Wednesday, September 23

What to do, what to do.

Really, sometimes I wonder when things will begin to go a bit more smoothly around here.

Yesterday I received a note from Will's teacher letting me know that he was unwilling to engage in any organized activity in his preschool classroom and that he'd rather throw things all day. When asked to pick up the things he's thrown, he starts flailing and pinching and kicking. *long whistle* She wants to meet with me.

The background:

We've been giving him something to help him sleep. It is helping - some - but he is still tired. I have to wake him at 6:30 to get on the bus and he still doesn't go to sleep early enough. I can't give him melatonin with the meds.

So this morning I had to take him to a doctor for follow up, and I got to see why he's not functioning in his classroom. He's exhausted. We've adjusted meds, so hopefully that will help, but otherwise, he really needs to sleep to allow his schedule to start adjusting and to let his body rest. He's also not eating when he's exhausted, which means he's losing weight. (It takes a lot of energy for him to chew and swallow.)

I'm contemplating taking him out of this preschool for the time being. What good does it do if I have to wake him at the crack of dawn and then he does nothing all morning in preschool? He is literally walking around exhausted, but then can't sleep when I need him to at night. We're in a vicious cycle and it seems never ending.

These are the days when I just want to crawl back in bed. I'm so overwhelmed I don't know where to begin.


  1. Hey, I don't have any real words of wisdom. Just wanted to let you know I'm here if you need me. Even if it's just to be a sounding bored or of course a drinking pal. Whatever. That stinks. I'm sorry. When are we starting the date night? Sounds like you and Jim could use one. Shan

  2. Hugs! I hate the medication - sleep - functioning dance. You're in my thoughts sweetie.

  3. I feel for you Heather. Is there an afternoon program available for him instead? Maybe the new med adjustment will make the difference. Big hugs for you all.

  4. It's preschool. Advice I've given to others before is simple -- play hookey for a few days and recharge and see what works best for your family.

  5. Thanks. I think we're leaning heavily towards pulling him and upping the amount of time he gets in ABA while working on getting him into the ABA school next year.